Saturday, November 1, 2008

Sleep Issues


Aldrich (right) has no problem in sleeping. When he feels sleepy, he just can sleep right away. Lately he always sing or imitate the sound of movie characters he watched before sleeping.

Axel (left) has sleeping issues. He need me to be there, accompany him, hold his feet according to his exact position. If I move my hand, he realized it. When he woke up and did not see me, he can not sleep very well. Then it effected his activities for whole day. It happened constantly for three years. It seem I had to sleep according to his habit.

Now he still needs "pre-time" sleeping usually half an hour or one hour. The different is I do not have to hold his feet all the time again. We usually discipline him in sleeping time. He has to sleep at least at 8 PM and wake up at 6.30 AM. Starting 7.30 PM we pray, turned the light off, kiss him, and cover him with blanket. Listening classical music helps to calm him.

This article related to my experience in sleeping issues.

*********************
Date First Published: April 2, 2007
Date Last Updated: October 30, 2008

Many individuals with an ASD have difficulty achieving normal sleep patterns. Whether they have trouble getting to sleep, wake numerous times during the night, or awaken very early and stay awake the rest of the day, sufficient sleep is definitely lacking. REM sleep patterns have been shown to be disturbed, and some individuals on the spectrum may even be suffering from an actual sleep disorder.

This can be a problem for the person with an ASD, as they have plenty to handle already without adding sleep deprivation to the list. Clearly, their unusual sleep pattern may also be a problem for family members whose own rest is disrupted. This is particularly true of parents of young children. Coping with their child with an ASD may be nearly impossible if parents are not only stressed, but constantly suffering from broken sleep.

This issue often overlaps with that of “rituals." (See Insistence on Sameness.) Bedtime routines can become exhausting. For example, children may demand a certain order of pre-bedtime events, that a parent lie down or stay in the room with them, that the entire household go to bed at the same time, or that all the blinds and curtains in the bedroom be positioned in a specific way. Non-compliance by family members can result in tantrums and an even more disrupted bedtime that impacts everyone in the household’s sleep and ability to cope the next day.


Source: IAN Community

Autism Puzzle I & II

These two documentaries film "Autism Puzzle I&II" provides more perspective regarding autism world.

http://quicksilverscreen.com/watch?video=50082

http://quicksilverscreen.com/watch?video=50083

Friday, August 8, 2008

Aldrich and animal book

In this video Aldrich learn to pronounce animal name. There are some animal that he still learn to name and pronounce it.


Axel try to speak 1-10

Friday, August 1, 2008

Purfect!!!!



Aldrich bed time prayer

"Thank you Lord Jesus for the day you have given us
Now Aldrich, Axel, Mommy, Daddy, Grandma, Arvi (cousin) will sleep.
May your angel be surrounded us ....to protect us.
Thank you Lord. In Jesus Name we pray. Amen! "


Axel asking for HELP
Axel still in making progress to communicate. One day he grabbed my hand and showed his handwriting : HELP.
I cried when I look in to his eyes.

Wednesday, June 4, 2008

What is autism

Autism is a severe developmental disorder that begins at birth or within the first two-and-a-half years of life. Most autistic children are perfectly normal in appearance, but spend their time engaged in puzzling and disturbing behaviors which are markedly different from those of typical children. It occurs in all racial, ethnic, and socioeconomic groups and is four times more likely to occur in boys than girls.

Today, 1 in 150 individuals is diagnosed with autism, making it more common than pediatric cancer, diabetes, and AIDS combined.

What is causes autism?
You will hear many theories about what causes autism. To date, no one has found the exact cause of autism.

Autism and genetics:
There are many in the scientific community who believe that there is a strong genetic component or pre-disposition to autism spectrum disorders.

It's important to note that in the past 10 years of looking for the "autism gene," none has been found which leads many researchers to believe that something had to TRIGGER the gene to turn on and cause autism.

According to officials at the National Institutes of Health, while there is most likely a genetic predisposition, there must also be an environmental component to autism. The rapid rise in the rate of autism over the last 15 years cannot be attributed solely to genetics.

Autism is no longer considered a heritable, genetic disorder. It is an environmentally triggered, therefore preventable and treatable disease. Environmental research holds the key to finding the cause and developing effective treatments for those affected.

Thimerosal

Thimerosal is a mercury-containing organic compound (an organomercurial). Thimerosal has been used in some vaccines since 1930's, when it was first introduced by Eli Lili company.

As a vaccine preservatives, thimerosal is used in concentrations of 0.003% to 0.01%. A vaccine containing 0.001% thimerosal as a preservatives contains 50 micrograms of thimerosal per 0.5 ml dose or approximately 25 micrograms of mercury per 0.5 mL dose.

In July 1999, U.S. Department of Health and Human Service (DHHS) agencies, including the National Institute of Allergy and Infectious Diseases (NIAID); The American Academy of Pediatrics; and vaccine manufacturers agreed that thimerosal should be reduced or eliminated in vaccines as a precautionary measure and to reduce exposure to mercury from all sources. This decision was based on the various Federal guidelines for methyl mercury exposure and the assumption that the health risks from methyl and ethyl mercury were the same. More research is needed to determine if the guidelines for methyl mercury are also appropriate guidelines for thimerosal.

MMR
Dr. Andrew Wakefield first cautioned parents of the potential link between autism and the MMR vaccine in 1998. He raised fears that the MMR vaccination could trigger bowel disorders in susceptible children.

His studies have shown the presence of persistent measles virus in children with ileocolonic lymphonodular hyperplasia which was shown repeatedly in children with developmental disorders. Dr. Wakefield's work confirmed an association between the presence of measles virus and gut pathology in children.

There is still ongoing research by Dr. Vijendra Singh, Dr. Arthur Krigsman, Dr. Andrew Wakefield, and others into this link. For more information on current research you can read the full transcript from the Congressional Hearing on June 19, 2002. All three of these doctors testified and shared current research information.

Symptom

  • Not play "pretend" games (pretend to "feed" a doll)

  • Not point at objects to show interest (point at an airplane flying over)

  • Not look at objects when another person points at them

  • Have trouble relating to others or not have an interest in other people at all

  • Avoid eye contact and want to be alone

  • Have trouble understanding other people's feelings or talking about their own feelings

  • Prefer not to be held or cuddled or might cuddle only when they want to

  • Appear to be unaware when other people talk to them but respond to other sounds

  • Be very interested in people, but not know how to talk to, play with, or relate to them

  • Repeat words or phrases said to them, or repeat words or phrases in place of normal language (echolalia)

  • Have trouble expressing their needs using typical words or motions

  • Repeat actions over and over again

  • Have trouble adapting to changes in routine

  • Have unusual reactions to the way things smell, taste, look, feel, or sound

  • Lose skills they once had (for instance, stop saying words they were once using)

Early Intervention Program
Every state has some form of early intervention program such as a 0-3 Infant Development Program.

Call your state or local Department of Human Services and ask to speak with someone who can help you set up a free evaluation for your child.

A team of trained professionals will come to your home and do an assessment and if your child meets their criteria for specific delays then you may qualify for services.


source:
autism.com
cdc.gov
naa.com

Friday, March 28, 2008

UN Resolution: 2 April 2008 : Autism Awareness Day

Sixty-second General Assembly
Third Committee
34th Meeting (PM)


THIRD COMMITTEE CALLS ON ASSEMBLY TO DESIGNATE 2 APRIL WORLD AUTISM DAY

Assembly Called on to Encourage, Facilitate

Establishment of Cooperatives among Excluded Groups

Acting without a vote this afternoon, the Third Committee (Social, Humanitarian and Cultural) approved eight draft resolutions which called on the General Assembly to take action on an array of issues, ranging from eliminating all forms of violence against women, through strengthening the United Nations crime prevention programme, to designating one special day as World Autism Day.


* *** *

Another resolution approved today on World Autism Awareness Day would have the Assembly designate 2 April as World Autism Awareness Day, to be observed every year beginning in 2008.


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Friday, February 29, 2008

Seeing Autistic - Can you see what they see?

See this.. interesting

Stephen Wiltshire (an Autistic): The Human Camera




Don't give up hope!

Marry

Thursday, February 28, 2008

Seeing Autistic - Can you feel it?

Try to read this

hfdsaghdkCANgdhjksajhdgYOUgfdhkjaggdhjkjhfa ggdREADhjdklslghjkjslkshdjklfkjshdhkTHIS?gfhdjk sajdhf ghdfjakEVRYTHINGghjkISghjkjghjkjhaghhk SOghfjksjhgCLUTTEREDghjkjhgs....


How does it feel?


Understand them better...

Don't give up hope!

Marry

the AUTISM ACCEPTANCE book


An eye opener!!! A book by Ellen Sabin, has tremendously helped us to gain more understanding about our sons' condition. It looks like a kindergarten stuff, but it is not! This book is designed for all ages. A highly recommended book.

Don't give up hope!

Marry